"No News is Good News"... Almost

First post to be finished is from December of 2013, the update (finally) from my November post. The update on test results. I need to heavily edit it because there have been a LOT more updates in the last 8 months, and the irony is that even once the post in finished, the topic is actually far from. But I will do my best,

And tonight I bring you "No News is Good News... Almost"

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I've always hated that phrase. I've hated to say it as a nurse, and I've hated to hear it as a patient. No news isn't always good news. No news can mean that the results are normal, or it could mean that the ball has been dropped (as it has on me more than once). No news could mean no news yet, or bad news once we get the proper consultations or specialists in place. I understand that a busy doctor's office can't call people with the results of all tests all the time, but I think that when it's a specific diagnostic test, then it would be nice to get a call regardless.b

It has been a long, hard, frustrating road since November, when the rest of us got tested for Celiac disease. Hubbyman and Princess came back negative in their bloodwork (only once I called the doctor, and fought with the receptionist, which was the original rant of this post). While we are GF at home, they enjoy gluten when we're out and about with no issue (other than the practical implications so as not to contaminate Tobes). It turns out that my test results weren't so straightforward. Apparently I am deficient in the component of the blood that they test for in the Celiac bloodwork, meaning my negative result meant nothing. I started getting some pretty gnarly symptoms in January, which led to the decision for me to get an endoscopy in May. I got some answers (negative for Celiac disease), but a whole lot more "wait and see", and "we'll call you"s that didn't happen. I barely saw the specialist (and only after I harassed the nurse. Apparently they thought I'd be fine with a printout, and wouldn't have any questions), and then got conflicting information from the pharmacist when my prescription changed. It's a good thing I'm a nurse, and know how to play the system...

I'm hoping more answers will come next week, when I actually meet the gastroenterologist who did the procedure in May for longer than 2 minutes while I'm still groggy. I'm hoping to hear more about my results from 3 months ago, and more about what I can/cannot do to help me feel better (my symptoms have started to appear and worsen again in the last few weeks).

The discussion of what drives me to get these answers can be saved for another day. For now what matters is that the whole "no news is good news" thing is a load of crock, and the waiting game sucks.